No Longer Undone

Today at 8am, Audrey’s ICU “suite” was turned briefly into a sterile operating room. The team of doctors and nurses came to her instead of risking any one thing to take her back to the OR where her surgery began.

They weren’t able to complete her whole surgery last Tuesday…most of it, yes. But the final step, the completion if you will, was left undone. The closure of her chest cavity.

For days I watched the rhythmic beat of her heart in close harmony with the rise and fall of her chest. This morning, we arrived at the hospital to see her heart once more before the window was closed.

Most parents have never seen their child’s beating heart, but we all feel them. We know them. A piece of our own hearts lives inside our children.

A success it was, the closure of her chest. And as Audrey’s incredible nurse said today, the day was spent getting to know her as a patient again. Learning what medications she needs to be stable, just how much oxygen her lungs require to breathe, and so many other details impossible to remember. Overall, her day was positive and moved in the direction they had hoped.

She will spend the next week or so continuing to recover under critical care and observation. She has several hurdles to overcome before she would be able to move back to the NICU.

Fluid and swelling need to come way down, but she’ll need to be able to stabilize her blood pressure at the same time. This has been a bit of a challenge thus far. Once the fluid is no longer a concern, they can begin the slow and patient process of weaning her from the vent which is breathing completely for her. She has been on heavy pain medication for so many days in a row, once she no longer needs it, they will have to taper quite slowly to keep from shocking her system. They will reduce the paralytic once again and watch her movements carefully. And many, many other pieces of the intricately detailed puzzle.

They weren’t able to use the “hidden” sutures preferred, instead hers are visible and will leave a significant scar. However, down the road a few months when her second open heart surgery takes place, the scarring should be cut away and upon completion of the surgery, her chest closed with a less severe looking scar.

Each day, we hope to see her make improvements, while being realistic that there may be set backs along the way. We must celebrate each victory, large or small, and be patient with her exceptionally weak and stressed body. She seems to be somewhat easily stressed by stimulation such as being moved, chest oscillation, tightening of her blood pressure cuff, etc.

I wonder what all of this feels like to her. How much of it does she actually sense? I’m reminded again of the first week of her life when I wanted so badly to hold her in my arms, here we are again. But while my arms may be empty of Baby Audrey, my heart is full of her. Of Cooper. Of Chris. I am so incredibly thankful that I get to embrace my boys any time I want. I think that sadly I take that for granted so much of the time.

Thank you for choosing to join us in loving thoughts and prayer this morning. Prayers were heard and once again answered. I believe in it, the power of it. This continuance of love and support is a gift you give to Audrey and her family. You follow through and for this we are forever grateful. We’ll need you more, we’ll need you often. We can never repay you, only can we pay it forward.

Thank you for reminding us that we’re not alone.

Sleep sweetly, dear warriors,
R

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10 thoughts on “No Longer Undone

  1. Thank you one and all for joining team Audrey this morning in prayer. The day has been full, the course was by my observation about as good as we could hope. We give God the glory and remain awed and deeply grateful to the medical orchestra for serving Audrey and all of us. Thank you, thank you, thank you. May He bless each of you.

    • Hi Mark, this is Cindy Miller. I have been following your precious granddaughter’s story and wanted you to know that you all are in our prayers. I had seen the story and at first did not realize who it was but then I saw mention of Rachel and the Leslie and Ebert families and I knew. God bless everyone and we will continue to pray for sweet Audrey. And of course for Rachel and Chris.

  2. GIVE THANKS TO THE LORD, FOR HE IS GOOD & HIS LOVE ENDURES FOREVER!
    I TRUELY BELIEVED AND FELT IT IN MY HEART SATURDAY NIGHT THAT ALL WOULD GO WELL SUNDAY MORNING @ 8 A.M. I JUST FELT GOD’S PRESENCE AS I WAS PRAYING FOR AUDREY TO EXPERIENCE A PERFECT PROCEDURE AND THE SCRIPTURE THAT CAME TO MY HEART WAS…….. AND WE KNOW THAT IN ALL THINGS GOD WORKS FOR THE GOOD OF THOSE WHO LOVE HIM WHO HAVE BEEN CALLED TO HIS PURPOSE. ROMANS 8:28
    OH, HOW YOU HAVE SHOWN YOUR LOVE AND FAITHFULNESS TO AND FOR OUR MIGHTY GOD AND WHAT A BLESSING TO YOUR BABY AUDREY!

    MAY YOUR CONTINUED TESTIMONY HELP EACH AND EVERYONE OF US GET TO KNOW THE LORD BETTER AND LOVE HIM MORE EACH AND EVERY DAY!
    HE IS OUR EVERYTHING FOR ETERNITY!

    STILL PRAYING…….

  3. Your pictures speak a million words~ I love how Rachel’s hand has Audrey’s little foot and Chris has Cooper’s arm. Stay close and love will prevail. God bless each of you as you courageously journey on~ Cynthia

    • Racheal, I’m not sure where Baby Audrey fits in your life but your love for her is quite obvious The important thing is. God sees this and your obedience to Him. This requires Hime to give you the desires of your heart. So Audrey’s future is in Gods hands and we must trust Him to do what is His will for her. Her illness has brought many together and when two or more are gathered in His Name He has promised to be there! When He is present miracle s happen. Father in the precious Name of Jesus I thank you from the depth of my being that you have trusted these loved ones with Audrey’s care and that her complete healing is taking place as we speakFather we give you all the Glory. We love you and we trust you totally. In Jesus name, Amen

  4. Rach, your prayer warriors thank you for your amazing ability to include each of us from our various locations all over the world. To know the exact prayer needs is so important and, to hear the updates – whether big or small – blesses us each. I cannot imagine how exhausted you are at the beginning or end of each day but, you take the time to journal. And, it isn’t just some words on paper, it is a poetic love letter to Audrey Bunny. One day, this will be the biggest gift for Audrey that she will cherish forever. Your love and strength amaze me every day. Take care of yourself, beautiful Rach. We love each of you so much. Keep fighting Audrey…I know some cousins that want to kiss you one day soon. Xoxo, Amy

  5. Father,restore the families energy that they may stay strong for baby Aydrey. Help them to hold each other up while God is doing his work, in Jesus name we ask and according to your word, It Is Done! Amen

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